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MetabERN - Education

Share information and documentation with actors involved in the field of hereditary metabolic disorders

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About Us


Dr Nadia Belmatoug

Leader of Workpackage 7 : “Education training and capacity building” and Coordinator of French Reference Centre of Lysosomal disease – Assistance Publique – Hôpitaux de Paris (APHP) - Beaujon Hospital.

Azza Ben Hamida-Khemiri

Project leader of the French Network “Filière G2M (Groupement des Maladies Métaboliques)” of rare metabolic diseases in charge of MetabERN, Europe and International and research.

Margaret Giuliani

Member of French association of patients VML “Vaincre les Maladies Lysosomales” and EGA ’European GaucherAlliance’. She is the link between E-PAG, EURORDIS and WP7. In charge of revision of education section of the website for English language.

Abel Poucet

Webmaster of the website “MetabERN: Education, training and Capacity building”.
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