Skip to main content
MetabERN - Education

Share information and documentation with actors involved in the field of hereditary metabolic disorders

Home > Patients > Associations of patients > Congenital disorders of glycosylation and disorders of intracellular (...) > CDG & Allies - Professionals and Patient Associations International (...)

CDG & Allies - Professionals and Patient Associations International Network (CDG & Allies- PPAIN)


Where families’ own needs and ideas are transformed into research projects.

Our research model:
Fomenting the research on rare diseases is essential to pave the way for therapeutic approaches and development, since for most of the patients there is still no treatment. In addition, experience says that any knowledge on the mechanism underlying rare diseases and its pathological manifestations will be beneficial, not only for those patients but also other patients with related pathological symptoms.

Link