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G2M: The French Network for Rare Metabolic Diseases

Filière Groupement des Maladies Rares du Métabolisme: G2M


The French Networkfor Rare Metabolic diseases "G2M" was certified in February, 2014, within the framework of the 2nd National Rare Disease plan, and its management confided to professor Brigitte CHABROL.

Since the new labelling of the Rare Disease Reference Centers "CRMR" and Rare Disease Competency Centers "CCMR" in 2017 (results were published in the Official Bulletin of September 15th, 2017 on August 8th, 2017), the French Network G2M groups 19 CRMR, among which 7 coordinating sites and 12 constituent sites, plus 47 CCMR across France.

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7 CRMR (Coordinators) :

- Inherited Metabolic Diseases - Pr Brigitte CHABROL - Marseille AP-HM, La Timone
- Fabry Disease - Pr Dominique GERMAIN - Paris APHP, Raymond Poincaré
- Iron deficiency anemia and porphyrias - Pr Laurent GOUYA - Paris APHP, Louis Mourier
- Lysosomal Storage Disorders - Dr Bénédicte HERON - Paris APHP, Trousseau
- Inherited Metabolic Diseases of the Liver - Pr Philippe LABRUNE - Paris APHP, Antoine Béclère
- Wilson Disease and other rare diseases related to copper - Dr France WOIMANT - Paris APHP, Lariboisière
- Hemochromatoses and other metabolic diseases related to iron - Dr Edouard BARDOU jacquet - CHU of Rennes

12 CRMR (constituent):

Inherited Metabolic Disorders:

1. Dr Dries DOBBELAERE - CHU Lille
2. Dr Nathalie GUFFON-FOUILHOUX - CHU Lyon
3. Pr François FEILLET - CHU Nancy
4. Pr Pascale DE LONLAY - Paris APHP, Necker
5. Dr Fanny MOCHEL - Paris APHP, Pitié Salpêtrière
6. Dr Manuel SCHIFF - Paris APHP, Robert Debré
7. Dr Pierre BROUE - CHU Toulouse
8. Pr François LABARTHE - CHU Tours

Lysosomal Disease Centers:

9. Dr Nadia BELMATOUG - Paris APHP, Beaujon
10. Dr Olivier LIDOVE - Paris Diaconnesses - la Croix St Simon
11. Dr Yann NADJAR - Paris APHP, Pitié Salpêtrière

Reference Center for Wilson Disease and other rare diseases related to copper

12. Pr Alain LACHAUX - CHU Lyon

47 Rare Diseases Competency Centers CCMR:

Inherited Metabolic Diseases: 20 CCMR

1. Dr Gilles MORIN - CHU Amiens
2. Dr Magalie BARTH - CHU Angers
3. Dr Cécilia ALTUZARRA - CHU BESANÇON
4. Dr Delphine LAMIREAU - CHU Bordeaux
5. Pr Loïc DE PARSCAU - CHU Brest
6. Dr Alina ARION - CHU Caen
7. Dr Nada HOUCINAT - CHU Dijon
8. Dr Gérard BESSON - CHU Grenoble
9. Dr Caroline MOREAU - CHU Lille
10. Dr Cécile LAROCHE - CHU Limoges
11. Pr Christophe LANCON - Marseille AP-HM
12. Dr Agathe ROUBERTIE - CHU Montpellier
13. Dr Alice KUSTER - CHU Nantes
14. Pr Brigitte GILBERT-DUSSARDIER - CHU Poitiers
15. Pr Nathalie BEDNAREK - CHU Reims
16. Dr Léna DAMAJ - CHU Rennes
17. Dr Stéphanie TORRE - CHU Rouen
18. Dr Claire GAY - CHU Saint-Etienne
19. Pr Mathieu ANHEIM - CHU Strasbourg
20. Dr Marie-Thérèse ABI WARDE - CHU Strasbourg

Fabry Disease: 4 CCMR

1. Pr Didier LACOMBE - CHU Bordeaux
2. Pr Bertrand DUSSOL - Marseille AP-HM
3. Dr Esther CHRISTMAS - CHU Strasbourg
4. Pr Stéphane DECRAMER - CHU Toulouse

Lysosomal Storage Disorders: 3 CCMR

1. Pr Marc BERGER - CHU Clermont-Ferrand
2. Dr Bérengère CADOR - CHU Rennes
3. Dr Francis GACHES - Toulouse Hôpital Ducuing

Inherited Metabolic Diseases of the Liver : 2 CCMR

1. Dr Martin BIOSSE DUPLAN - Paris APHP Bretonneau
2. Pr Emmanuel GONZALES - Paris APHP Kremlin Bicêtre

Wilson disease and other rare diseases related to copper: 8 CCMR

1. Dr Claire VANLEMMENS - CHU BESANÇON
2. Pr Victor DE LEDINGHEN - CHU Bordeaux
3. Dr Valérie CANVA - CHU Lille
4. Dr Frédérique FLUCHERE - Marseille AP-HM
5. Dr Rodolphe SOBESKY - Paris APHP Kremlin Bicêtre
6. Dr Dominique DEBRAY - Paris APHP Necker
7. Dr Edouard BARDOU-JACQUET - CHU Rennes
8. Dr Fabienne ORY-MAGNE - CHU Toulouse

Hemochromatoses and other iron metabolism diseases: 10 CCMR

1. Pr Véronique LOUSTAUD RATTI - CHU Limoges
2. Dr Stéphane DURUPT - Lyon HCL GH Sud
3. Pr Danielle BOTTA-FRIDLUND - Marseille AP-HM
4. Pr Patricia AGUILAR MARTINEZ - CHU Montpellier
5. Dr Bernard DRENOU - CHU Mulhouse GHRMSA
6. Dr Xavier CAUSSE - CHU Orléans
7. Pr Gilles PELLETIER - Paris APHP Brousse-Villejuif
8. Pr François DURAND - Paris APHP Beaujon
9. Pr Nathalie GANNE-CARRIE - Paris APHP J.Verdier
10.Pr Christophe BUREAU - CHU Toulouse