International Gaucher Alliance (IGA)
Our visions is a world where all Gaucher patients have access to the treatment and care they need and there is the possibility of a cure.
IGA has the mission to be the global voice for Gaucher patients and their families:
to empower its members;
to advocate on behalf of Gaucher patients;
to ensure that the Gaucher research agenda is focussed on patients’ unmet needs;
to take collective action to address challenges Gaucher patients worldwide face in accessing early diagnosis and optimal treatment and care. Link