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MetabERN - Education

Share information and documentation with actors involved in the field of hereditary metabolic disorders

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PKU Kids video

English and French videos

Les Feux Follets Association

A partnership with a group of qualified experts and a student of the HEAR of Strasbourg, Audrey Lagadec, led the development of this video.

The objective of this animation is to provide a fun educational tool for children of 3 years old and older to share on the topic of the phenylketonuria with the patient or his peers (siblings, classmates, children of the family).

A sequel to the project is being considered: a game application for tablets.

PR François Labarthe, Annick Perrier and Véronique Berthe-Dequin have enlightened Audrey Lagadec with their advice.

You can discover Robin in the video !

Dedicated article on the association website: